BioCAPTURE registry data

In this ongoing prospective cohort study containing data of 24 Dutch hospitals, patients with psoriasis are asked to be included for the BioCAPTURE registry at the moment of initiating a biologic. In case of inclusion, prospecitve data collection starts and is retrieved from electronic patient records (demographics, intoxications, comorbidities, medical history, psoriasis treatment history, disease activity scores (incl. Psoriasis Area and Severity Index (PASI)), side effects, dosages of biologics. Patients are also asked for questionnaire research participation. Those that consent are sent web-based questionnaires every three months in the first year after starting a specific biologic, and annualy in the years thereafter. In case they switch to another biologic, this series starts again. Questionnaires focus on a broad range of topics, including dermatology-related quality of life, treatement satistfaction with medication, health status, work productivity, healthcare usage. The current analytical dataset includes >2700 treatement episodes of 1550 unique patients.