Haematological cancer dataset

The Netherlands Cancer Registry (NCR) has been the national source of cancer data since 1989, providing comprehensive and reliable statistics on cancer in the Netherlands. Maintained by the Netherlands Comprehensive Cancer Organisation (IKNL), the NCR is a cornerstone of cancer control—supporting efforts from prevention and early detection to treatment, survivorship, and palliative care

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Titel Haematological cancer dataset
Omschrijving

The Netherlands Cancer Registry (NCR) has been the national source of cancer data since 1989, providing comprehensive and reliable statistics on cancer in the Netherlands. Maintained by the Netherlands Comprehensive Cancer Organisation (IKNL), the NCR is a cornerstone of cancer control—supporting efforts from prevention and early detection to treatment, survivorship, and palliative care
Keywords
Contact points
Contact point 1
URI
Naam
NKR Analyse
Name (translations)
Email
gegevensaanvraag@iknl.nl
Identifier
URL
  1. https://iknl.nl/over-iknl/contact-adres
Publisher
Publisher 1
URI
Naam
Integraal Kankercentrum Nederland
Name (translations)
Email
gegevensaanvraag@iknl.nl
URL
https://iknl.nl/over-iknl/contact-adres
Type
http://purl.org/adms/publishertype/Academia-ScientificOrganisation
Publisher note
Publisher type
Identifier
['ISNI 0000 0004 0501 9982\n', 'https://ror.org/03g5hcd33\n']
Country
['http://publications.europa.eu/resource/authority/country/NLD']
Creator
Creator 1
URI
Naam
Integraal Kankercentrum Nederland
Name (translations)
Email
gegevensaanvraag@iknl.nl
URL
https://iknl.nl/over-iknl/contact-adres
Type
http://purl.org/adms/publishertype/Academia-ScientificOrganisation
Publisher note
Publisher type
Identifier
['ISNI 0000 0004 0501 9982', 'https://ror.org/03g5hcd33 ']
Country
['http://publications.europa.eu/resource/authority/country/NLD']
Landing page
Release date
Modification date
In Series
    Versie
    Version notes
    Dataset status
    Identifier https://fdp-acc.healthdata.nl/dataset/349d2d2e-5815-4b3b-ba7a-38c92f505e5a
    Frequency http://publications.europa.eu/resource/authority/frequency/DAILY
    Provenance
    Type http://publications.europa.eu/resource/authority/dataset-type/STATISTICAL
    Temporal coverage
    Temporal resolution
    Spatial coverage
    Spatial coverage 1
    URI
    http://publications.europa.eu/resource/authority/country/NLD
    Label
    Geometry
    Bounding Box
    Centroid
    Spatial resolution in meters
    Access rights http://publications.europa.eu/resource/authority/access-right/RESTRICTED
    Other identifier
    Theme
    1. http://publications.europa.eu/resource/authority/data-theme/HEAL
    Taal
    1. http://publications.europa.eu/resource/authority/language/NLD
    Documentation
    1. https://iknl.nl/getmedia/ce4ead48-ba30-4b10-8df8-955e4c6f1c18/NKR_Itemset_Hemato-oncologie_ALL_april2022_IKNL.pdf
    Conforms to
    Is referenced by
    1. https://iknl.nl/kankersoorten
    Distribution
    Sample
    Analytics
    Applicable legislation
    1. http://data.europa.eu/eli/reg/2025/327/oj
    2. https://wetten.overheid.nl/jci1.3:c:BWBR0037603&hoofdstuk=5&artikel=5.8&z=2024-04-04&g=2024-04-04
    Has version
    Code values
    Coding system
    1. https://hdeu-dcat.acceptance.data.health.europa.eu/resource/authority/coding-system/ATC
    2. https://hdeu-dcat.acceptance.data.health.europa.eu/resource/authority/coding-system/ICD-O-3
    3. https://hdeu-dcat.acceptance.data.health.europa.eu/resource/authority/coding-system/LOINC
    4. https://hdeu-dcat.acceptance.data.health.europa.eu/resource/authority/coding-system/SNOMED-CT
    Purpose
    1. https://w3id.org/dpv#LegalCompliance
    2. https://w3id.org/dpv#ProvideOfficialStatistics
    3. https://w3id.org/dpv#ResearchAndDevelopment
    Health category
    Health theme
    1. https://hdeu-dcat.acceptance.data.health.europa.eu/resource/authority/health-theme/CANCER_DISEASE
    Legal basis
    1. https://w3id.org/dpv#LegalObligation
    Minimum typical age 1
    Maximum typical age 120
    Number of records 395585
    Number of records for unique individuals. 316051
    Personal data
    1. https://w3id.org/dpv/pd#Demographic
    2. https://w3id.org/dpv/pd#Gender
    3. https://w3id.org/dpv/pd#HealthHistory
    4. https://w3id.org/dpv/pd#HealthRecord
    5. https://w3id.org/dpv/pd#IncomeBracket
    6. https://w3id.org/dpv/pd#Region
    Publisher note
    Publisher type
    Trusted Data Holder
    Population coverage

    Adults aged 18–100 diagnosed with haematological cancer in the Netherlands since 1989
    Retention period
    Health data access body
    Qualified relation
    Was generated by
    Was generated by 1
    Activity URI
    https://hdeu-dcat.acceptance.data.health.europa.eu/resource/authority/health-activity/DISEASE_MONITORING
    Label
    Soort activiteit
    []
    See also
    Type
    Started at time
    Associated agent
    Qualified attribution
    Quality annotations
    URI https://fdp-test.healthdata.nl/dataset/25c54e6f-0906-4df9-9e4e-5965d66780c8