BioCAPTURE registry data

In this ongoing prospective cohort study containing data of 24 Dutch hospitals, patients with psoriasis are asked to be included for the BioCAPTURE registry at the moment of initiating a biologic. In case of inclusion, prospecitve data collection starts and is retrieved from electronic patient records (demographics, intoxications, comorbidities, medical history, psoriasis treatment history, disease activity scores (incl. Psoriasis Area and Severity Index (PASI)), side effects, dosages of biologics. Patients are also asked for questionnaire research participation. Those that consent are sent web-based questionnaires every three months in the first year after starting a specific biologic, and annualy in the years thereafter. In case they switch to another biologic, this series starts again. Questionnaires focus on a broad range of topics, including dermatology-related quality of life, treatement satistfaction with medication, health status, work productivity, healthcare usage. The current analytical dataset includes >2700 treatement episodes of 1550 unique patients.

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Titel BioCAPTURE registry data
Omschrijving

In this ongoing prospective cohort study containing data of 24 Dutch hospitals, patients with psoriasis are asked to be included for the BioCAPTURE registry at the moment of initiating a biologic. In case of inclusion, prospecitve data collection starts and is retrieved from electronic patient records (demographics, intoxications, comorbidities, medical history, psoriasis treatment history, disease activity scores (incl. Psoriasis Area and Severity Index (PASI)), side effects, dosages of biologics. Patients are also asked for questionnaire research participation. Those that consent are sent web-based questionnaires every three months in the first year after starting a specific biologic, and annualy in the years thereafter. In case they switch to another biologic, this series starts again. Questionnaires focus on a broad range of topics, including dermatology-related quality of life, treatement satistfaction with medication, health status, work productivity, healthcare usage. The current analytical dataset includes >2700 treatement episodes of 1550 unique patients.
Keywords
Contact points
Contact point 1
URI
mailto:onderzoek.derma@radboudumc.nl
Naam
Name (translations)
Email
Identifier
URL
    Publisher
    Publisher 1
    URI
    Naam
    Radboudumc
    Name (translations)
    Email
    URL
    Type
    Publisher note
    Publisher type
    Identifier
    https://ror.org/05wg1m734
    Creator
    Creator 1
    URI
    Naam
    Juul van den Reek
    Name (translations)
    Email
    URL
    Type
    Publisher note
    Publisher type
    Identifier
    https://orcid.org/0000-0002-3642-2673
    Creator 2
    URI
    Naam
    Elke de Jong
    Name (translations)
    Email
    URL
    Type
    Publisher note
    Publisher type
    Identifier
    https://orcid.org/0000-0003-3872-5704
    Landing page
    Release date 2024-12-09T23:00:00+00:00
    Modification date
    In Series
      Versie
      Version notes
      Identifier https://fdp.radboudumc.nl/dataset/7f46da57-c566-4410-ac9a-eb382b400189
      Frequency
      Provenance
      Type
      Temporal coverage
      Temporal resolution
      Spatial coverage
      Spatial resolution in meters
      Access rights
      Other identifier
      Theme
      1. http://publications.europa.eu/resource/authority/data-theme/HEAL
      Taal
      1. http://id.loc.gov/vocabulary/iso639-1/en
      Documentation
      Conforms to
      Is referenced by
      Distribution
      Sample
      Analytics
      Applicable legislation
      Has version
      Code values
      Coding system
      Purpose
      Health category
      Health theme
      Legal basis
      Minimum typical age
      Maximum typical age
      Number of records
      Number of records for unique individuals.
      Personal data
      Publisher note
      Publisher type
      Trusted Data Holder
      Population coverage
      Retention period
      Health data access body
      Qualified relation
      Provenance activity
      Qualified attribution
      Quality annotations
      URI https://fdp.radboudumc.nl/dataset/7f46da57-c566-4410-ac9a-eb382b400189