BioCAPTURE registry data

In this ongoing prospective cohort study containing data of 24 Dutch hospitals, patients with psoriasis are asked to be included for the BioCAPTURE registry at the moment of initiating a biologic. In case of inclusion, prospecitve data collection starts and is retrieved from electronic patient records (demographics, intoxications, comorbidities, medical history, psoriasis treatment history, disease activity scores (incl. Psoriasis Area and Severity Index (PASI)), side effects, dosages of biologics. Patients are also asked for questionnaire research participation. Those that consent are sent web-based questionnaires every three months in the first year after starting a specific biologic, and annualy in the years thereafter. In case they switch to another biologic, this series starts again. Questionnaires focus on a broad range of topics, including dermatology-related quality of life, treatement satistfaction with medication, health status, work productivity, healthcare usage. The current analytical dataset includes >2700 treatement episodes of 1550 unique patients.

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Titel BioCAPTURE registry data
Omschrijving

In this ongoing prospective cohort study containing data of 24 Dutch hospitals, patients with psoriasis are asked to be included for the BioCAPTURE registry at the moment of initiating a biologic. In case of inclusion, prospecitve data collection starts and is retrieved from electronic patient records (demographics, intoxications, comorbidities, medical history, psoriasis treatment history, disease activity scores (incl. Psoriasis Area and Severity Index (PASI)), side effects, dosages of biologics. Patients are also asked for questionnaire research participation. Those that consent are sent web-based questionnaires every three months in the first year after starting a specific biologic, and annualy in the years thereafter. In case they switch to another biologic, this series starts again. Questionnaires focus on a broad range of topics, including dermatology-related quality of life, treatement satistfaction with medication, health status, work productivity, healthcare usage. The current analytical dataset includes >2700 treatement episodes of 1550 unique patients.
Keywords
Contact points
Contact point 1
URI
Naam
Name (translations)
Email
Identifier
mailto:onderzoek.derma@radboudumc.nl
Publisher
Publisher 1
URI
Naam
Name (translations)
Email
URL
Type
Identifier
https://ror.org/05wg1m734
Creator
Creator 1
URI
Naam
Name (translations)
Email
URL
Type
Identifier
https://orcid.org/0000-0002-3642-2673
Creator 2
URI
Naam
Name (translations)
Email
URL
Type
Identifier
https://orcid.org/0000-0003-3872-5704
Landing page
Release date 2024-12-09T23:00:00+00:00
Modification date
Temporal start date
Temporal end date
In Series
    Versie
    Version notes
    Identifier https://fdp.radboudumc.nl/dataset/7f46da57-c566-4410-ac9a-eb382b400189
    Frequency
    Provenance
    Type
    Temporal coverage
    Temporal resolution
    Spatial coverage
    Spatial resolution in meters
    Access rights
    Other identifier
    Theme
    1. http://publications.europa.eu/resource/authority/data-theme/HEAL
    Taal
    1. http://id.loc.gov/vocabulary/iso639-1/en
    Documentation
    Conforms to
    1. https://fdp.radboudumc.nl/profile/2f08228e-1789-40f8-84cd-28e3288c3604
    Is referenced by
    Analytics
    Applicable legislation
    Has version
    Code values
    Coding system
    Purpose
    Health category
    Health theme
    Legal basis
    Minimum typical age
    Maximum typical age
    Number of records
    Number of records for unique individuals.
    Personal data
    Publisher note
    Publisher type
    Trusted Data Holder
    Population coverage
    Retention period
    Health data access body
    Qualified relation
    Provenance activity
    Qualified attribution
    Quality annotations
    URI https://fdp.radboudumc.nl/dataset/7f46da57-c566-4410-ac9a-eb382b400189